Patients & Caregivers
Real Life StoriesGain Insight from Patients
These stories feature individuals who have struggled with unexpected challenges and came through with flying colors, offering us all hope and sharing lessons in patience, persistence, and gratitude.
Share Your Story
If you are a pericarditis patient or caregiver who would like to share your experience to help others, please contact us.
Recurrent Pericarditis Story – Matt
← Go Back Meet Matt Matt’s story of recurrent pericarditis (RP) is one of an unexpected illness with no advance warning, no known cause and what we now know as a diagnostic odyssey that included receiving the wrong diagnosis, and delays in getting care.Matt’s story of...
Real Life Stories- Pericarditis Patient: Amanda
← Go Back Meet Amanda Amanda Handley, a world-renowned opera singer, whose very breath enables her to practice her art…whose every breath can bring debilitating pain….lives and performs with pericarditis. This is her story.Amanda is among the world’s premier opera...
Real Life Stories- Pericarditis Patient: Rachel
← Go Back Meet Rachel To celebrate heart month, we are featuring individuals who have struggled with unexpected challenges and come through with flying colors, offering us all hope and sharing lessons in patience, persistence, and gratitude. Today we celebrate Rachel...